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Resources

Australian Breast Cancer Tissue Bank

The Australian Breast Cancer Tissue Bank (ABCTB) has been established to facilitate research projects requiring biospecimens and data. Biospecimens are annotated with clinical information, including treatment received and longitudinal clinical follow-up.

Applications are accepted from all researchers with studies into breast cancer and are subject to review.

If you would like further details relating to the biospecimens, data available and the processes and guidelines on how to apply to access the resource, please visit – www.abctb.org.au.

The National Breast Cancer Foundation provides essential funding to ABCTB. ABCTB also currently receive funding from NHMRC and Cancer Institute NSW.

kConFab

The national Kathleen Cuningham Consortium for research into Familial Breast cancer

In 1997, kConFab, with the help of the family cancer centres in Australia and New Zealand, began enrolling families with a strong history of breast and breast and/or ovarian cancer. Genetic, epidemiological, medical, psychosocial and clinical follow up data collected from these families, along with biospecimens, are used to search for and characterise germ-line mutations in predisposing genes such as BRCA1, BRCA2 and ATM.

kConFab has accumulated data on more than 1500 multigenerational, multi-case, kindreds. The collected data and biospecimens are widely available to researchers for use in peer-reviewed and ethically-approved funded research projects. The resource supports research into familial aspects of breast, ovarian and in recent times, prostate cancer.

If you would like further details relating to the biospecimens, data available and the processes and guidelines on how to apply to access the resource, please visit – www.kconfab.org.

The National Breast Cancer Foundation provides essential funding to kConFab. Currently, kConFab also receive funding from NHMRC.

Lifepool

Lifepool is a prospective cohort of women and has been established to support research into breast cancer and other women’s health issues. In close collaboration with BreastScreen Victoria, women are invited to join lifepool.

Participants provide health and lifestyle data and written consent for access to their mammograms, tracking of their health through linkage with health databases, access to clinical data and archival pathology tissue if they develop breast cancer, and permission for future contact. A subset of participants also donate a DNA sample for research.

The resources of lifepool are available to researchers nationally and internationally for use in peer reviewed, ethically approved research. For more information and to review the Access Policy and Application form, please visit www.lifepool.org/forresearchers.htm  or email lifepool@petermac.org.

Lifepool is funded by the National Breast Cancer Foundation.

Register4

Tens of thousands of Australians have volunteered to participate in breast cancer research via Register4. This initiative of the National Breast Cancer Foundation is an online community for anyone 18 years and over who wants to participate in breast cancer research.

Register4 helps Australia’s breast cancer research community swiftly identify and engage willing research participants. The aim is to free up the time and money you spend tracking down the right kind of people, so that more time can be spent advancing breast cancer research.

If you would like to learn more about how Register4 can help you find the people you need for your research, please visit – www.register4.org.au.